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Monday, November 24, 2014

Mass. Parents Report Early Logjam In Care For Mentally Ill Kids

From WBUR 90.9 FM's Blog "CommonHealth"

By Carey Goldberg
November 12, 2104

It usually happens in spring: the annual back-up of mentally ill kids who need beds in Massachusetts psychiatric hospitals or residential care centers.

Lisa Lambert of PPAL
But Lisa Lambert, executive director of the Parent/Professional Advocacy League, which works on behalf of mentally ill children and their families, reports that already this fall, the waits are unusually long and the resulting crises severe.

(Imagine: a child in severe emotional distress, stuck in an Emergency Room for days. Or stuck in a hospital far from home, because there are no local beds.)

What’s happening? It’s not exactly clear. Might it be that state social service agencies are putting kids into residential care more than usual in the wake of the Jeremiah Oliver case? Is it a longer-term effect of having more community-based treatment for kids?


Community care is widely considered a good thing, but it could mean that because children in crisis stay at home longer, their needs are more acute when they’re brought in for care. Lambert writes that the bottom line is that no one seems to be taking responsibility for alleviating the back-up, and the situation is getting dire:

At my office, the phone and emails are nonstop. Often, they spill over to the weekend. A few days ago, we heard from a mom whose 14 year old son had swallowed a bottle of Tylenol. This was his third suicide attempt. She rushed him to the emergency room and got medical treatment right away. But once that was completed, he needed inpatient mental health care.

“You have to wait, his mother was told twice a day. “There are no beds.” She’s a smart and proactive parent and was trying every avenue to budge a system that told her there was nowhere to admit her son for treatment. When she called us he’d been waiting for four days and counting.

We are not the only state grappling with this issue. Last summer, the Sacramento Bee reported that hospitalizations for California children and teens had spiked 38% between 2007 and 2012. Nationally, hospitalizations have also increased but at a slower pace than California. Connecticut also reports an increase in children and teens coming to emergency rooms in psychiatric crisis. Data from the state’s behavioral health partnership shows that the number of children and teens stuck in emergency rooms rose by 20 percent from 2012 to 2013.

When a child is put in either a medical (not psychiatric) bed or waits in the emergency room, it is referred to as “medical boarding” or just “boarding.” We are hearing a new term this year: boarding at home. Parents are told their child needs a hospital or other acute care bed (which means they are a danger to themselves or someone else) and then told the child will be “boarded at home.”

Unsurprisingly, parents worry both about that child and any brothers or sisters. This happened to Kelly, a mother of an 11-year-old boy, Her son was aggressive, diagnosed with a mood disorder and had been hospitalized before. She would have to find someone to care for her five other children if he waited days in the ER. She agreed to “board” him at home and her worst fears were realized when he attacked his younger sister.

Charges of neglect were filed against her for failing to protect her daughter, and she is angry and frustrated. “I did everything that was recommended, she said. “And now this.”

.............................................................

From PPAL.org

Acute Mental Health Care for Kids: A Mirage in Massachusetts?

By Lisa Lambert

November 11, 2014

It’s that time of year again. Oh wait, it’s actually several months too early. The “seasonal crisis” around psychiatric beds for children and teens has shown up far earlier this year and with a vengeance. According to the calendar, there should be at least a few beds available for the children and teens that need them. A logjam like this is supposed to take place in the spring.

At my office, the phone and emails are nonstop. Often, they spill over to the weekend. A few days ago, we heard from a mom whose 14 year old son had swallowed a bottle of Tylenol. This was his third suicide attempt. She rushed him to the emergency room and got medical treatment right away. But once that was completed, he needed inpatient mental health care.


“You have to wait, his mother was told twice a day. “There are no beds.” She’s a smart and proactive parent and was trying every avenue to budge a system that told her there was nowhere to admit her son for treatment. When she called us he’d been waiting for four days and counting.


We are not the only state grappling with this issue. Last summer, the Sacramento Bee reported that hospitalizations for California children and teens had spiked 38% between 2007 and 2012. Nationally, hospitalizations have also increased but at a slower pace than California. Connecticut also reports an increase in children and teens coming to emergency rooms in psychiatric crisis. Data from the state’s behavioral health partnership shows that the number of children and teens stuck in emergency rooms rose by 20 percent from 2012 to 2013.

When a child is put in either a medical (not psychiatric) bed or waits in the emergency room, it is referred to as “medical boarding” or just “boarding.” We are hearing a new term this year: boarding at home. Parents are told their child needs a hospital or other acute care bed (which means they are a danger to themselves or someone else) and then told the child will be “boarded at home.” Unsurprisingly, parents worry both about that child and any brothers or sisters.

This happened to Kelly, a mother of an 11-year-old boy, Her son was aggressive, diagnosed with a mood disorder and had been hospitalized before. She would have to find someone to care for her five other children if he waited days in the ER. She agreed to “board” him at home and her worst fears were realized when he attacked his younger sister.

Charges of neglect were filed against her for failing to protect her daughter, and she is angry and frustrated. “I did everything that was recommended, she said. “And now this.”

Spending days in an emergency room can make some young people’s problems worse. They see other kids leave and wonder why they are still stuck there. Some have parents who stay the whole time, while others don’t. Often the behavioral health rooms are stark and isolated, not intended for long stays.

Hannah, the mother of a 16 year old called us after she and her son had waited for a bed for seven days. His diagnosis was complicated and he was a large teen (over 6 feet tall) so several hospitals had turned him down. His behavior had escalated at school, with lots of yelling and becoming agitated. She feared he would be arrested and stayed up all night watching over him before she brought him to be evaluated. She was told that if she left him alone in the ER she would be charged with abandonment, so she stayed and worried about her terminally ill mother-in-law and how long her employer would be patient.

Hannah’s son was finally sent to a hospital out of state. Sometimes, that is the only option for children with complicated diagnoses. But families can’t always make that work, particularly if they don’t own a car, work two jobs or don’t speak English.

There is no true planning going on to fix inpatient care for kids in Massachusetts. We have meetings, we talk, we share our war stories. There are worries that more beds will close because the rates don’t cover costs. There are reports that the kids who are admitted are more acute than they were five years ago and inpatient care might need to be redesigned to address that.

Some speculate that because we have put strong community-based services in place, we are seeing the unintended consequence of families and clinicians managing children in their homes and communities until the last possible second. This means children have very acute needs when they come to the emergency room.

Whatever the reasons, the impact on families is enormous. They often weigh two terrible options. If they wait for days with their child, their other children suffer or they put their job at risk. If they bring their child home, they might not be able to manage things and someone could be hurt.

Stephanie, a single mother of three, stayed in the ER by her son’s side last month for four days. She was told that she couldn’t leave him. Her mother stayed with her eight year daughter, who missed school. Even though she called the school to say she was stuck at the hospital, they filed against her saying her daughter was truant.

No one seems to be responsible.

At my office, we are recommending that parents call their insurers directly and ask them for help. We tell them to call their legislator and let them know we can’t fix this alone. So far, the best we can do is support each other and advocate like there is no tomorrow.

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